TY - JOUR
T1 - Athletes with Neurodegenerative Disease: A Phenomenological Exploration of Family Members’ Experiences
AU - Smith, Matthew
AU - Young, Georgia
AU - Batten, John
AU - Parry, Keith
AU - Collins, Rosie
AU - Anderson, Eric
AU - White, Adam
N1 - Publisher Copyright:
© 2021 Nova Southeastern University. All rights reserved.
PY - 2021/11/15
Y1 - 2021/11/15
N2 - This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member's condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.
AB - This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member's condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.
KW - Ethnodrama
KW - Neurological health
KW - Phenomenology
KW - Stressors
KW - Temporal analysis
UR - http://www.scopus.com/inward/record.url?scp=85120918372&partnerID=8YFLogxK
UR - https://www.mendeley.com/catalogue/b6be793a-af8c-347c-a7d0-059561228382/
U2 - 10.46743/2160-3715/2021.4899
DO - 10.46743/2160-3715/2021.4899
M3 - Article
VL - 26
SP - 3492
EP - 3518
IS - 11
ER -