Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers

Blerina Kellezi, Kate Beckett, Sarah Earthy, Jo Barnes, Jude Sleney, Julie Clarkson, Steve Regel, Trevor Jones, Denise Kendrick

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Abstract

OBJECTIVE: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. RESULTS: Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers’ time limitations and uncertainty around information provision, and patients’ reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient’s needs and ways they can help could help carers fulfil their caring role.
Original languageEnglish
Pages (from-to)564-571
JournalInjury – International Journal of the Care of the Injured
Volume46
Issue number4
Publication statusPublished - Apr 2015

Keywords

  • Carer
  • Information needs
  • Information provision
  • Patient
  • Service provider

Cite this

Kellezi, B., Beckett, K., Earthy, S., Barnes, J., Sleney, J., Clarkson, J., ... Kendrick, D. (2015). Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers. 46(4), 564-571.
Kellezi, Blerina ; Beckett, Kate ; Earthy, Sarah ; Barnes, Jo ; Sleney, Jude ; Clarkson, Julie ; Regel, Steve ; Jones, Trevor ; Kendrick, Denise. / Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers. 2015 ; Vol. 46, No. 4. pp. 564-571.
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abstract = "OBJECTIVE: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. RESULTS: Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers’ time limitations and uncertainty around information provision, and patients’ reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient’s needs and ways they can help could help carers fulfil their caring role.",
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Kellezi, B, Beckett, K, Earthy, S, Barnes, J, Sleney, J, Clarkson, J, Regel, S, Jones, T & Kendrick, D 2015, 'Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers' vol. 46, no. 4, pp. 564-571.

Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers. / Kellezi, Blerina; Beckett, Kate; Earthy, Sarah; Barnes, Jo; Sleney, Jude; Clarkson, Julie; Regel, Steve; Jones, Trevor; Kendrick, Denise.

Vol. 46, No. 4, 04.2015, p. 564-571.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers

AU - Kellezi, Blerina

AU - Beckett, Kate

AU - Earthy, Sarah

AU - Barnes, Jo

AU - Sleney, Jude

AU - Clarkson, Julie

AU - Regel, Steve

AU - Jones, Trevor

AU - Kendrick, Denise

PY - 2015/4

Y1 - 2015/4

N2 - OBJECTIVE: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. RESULTS: Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers’ time limitations and uncertainty around information provision, and patients’ reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient’s needs and ways they can help could help carers fulfil their caring role.

AB - OBJECTIVE: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. RESULTS: Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers’ time limitations and uncertainty around information provision, and patients’ reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient’s needs and ways they can help could help carers fulfil their caring role.

KW - Carer

KW - Information needs

KW - Information provision

KW - Patient

KW - Service provider

M3 - Article

VL - 46

SP - 564

EP - 571

IS - 4

ER -